Privacy statement (GDPR)

This privacy statement applies to citizens and legal permanent residents of the European Union, the European Economic Area, Switzerland and the United Kingdom.

In this privacy statement, we explain what we do with the data we obtain about you via https://www.eurosarcoidosis.org. We recommend you carefully read this statement. In our processing we comply with the requirements of the European Union’s GDPR privacy legislation. This means, among other things, that:
– we clearly state the purposes for which we process personal data. We do this by means of this privacy statement;
– we aim to limit our collection of personal data to only the personal data required for legitimate purposes;
– we first request your explicit consent to process your personal data in cases requiring your consent;
– we take appropriate security measures to protect your personal data and also require this from parties that process personal data on our behalf;
– we respect your right to access your personal data or have it corrected or deleted, at your request.
If you have any questions, or want to know exactly what data we keep of you, please contact us (see contact details below).

1. Purpose, data and retention period

We may collect or receive personal information for a number of purposes connected with our business operations which may include the following:

1.1 Contact – Through email and/or webforms

For this purpose we use the following data:
– A first and last name
– An email address
– Internet activity information, including, but not limited to, browsing history, search history, and information regarding a consumer’s interaction with an Internet Web site, application, or advertisement
– Geolocation data

The basis on which we may process this data is: Upon the provision of consent. Retention period: Upon termination of the service we retain this data for the following period: five years.

1.2 Donations and payments

The basis on which we may process this data is: Upon the provision of consent. Retention period: Upon termination of the service we retain this data for the following period: five years.

Please note:
– We only accept donations and payments if it can be ascertained that the sources of donations and payments are acting in good faith and have truthfully declared their legal name, street address, city, postal code, and country or region of residence to our financial services partners or, in the case of direct bank-to-bank transfers, to us.
– This data, and financial details provided to these financial services partners, will not be processed via, or be stored on, this website.
– Tax consultants, accountants and lawyers working on our behalf may access, process and retain this data and financial details from the online systems of these partners in order to check and document if our administration complies with, among others, national and international banking regulations, tax requirements and financial legislation. Under these regulations, requirements and legislation the retention period may be longer than five years.
– We reserve the right to return donations and payments without stating a reason.

1.3 Newsletters

The basis on which we may process this data is: Upon the provision of consent. Retention period: Upon termination of the service we retain this data for the following period: five years.

1.4 Compiling and analyzing statistics for website improvement

The basis on which we may process this data is: Upon the provision of consent. Retention period: Upon termination of the service we retain this data for the following period: five years.

2. Sharing with other parties

We only share or disclose this data to processors for the following purposes: website development, marketing, and financial services, and only if the processors involved guarantee GDPR equivalency.

3. Cookies

Our website uses cookies. For more information about cookies, please refer to our Cookie Policy, accessible via https://www.eurosarcoidosis.org/legal/.

This website uses the Privacy Suite for WordPress by Complianz to collect and record Browser and Device-based Consent. For this functionality, your IP address is anonymized and stored in our database. This service does not process any personally identifiable information and does not share any data with the service provider. For more information, see the Complianz Privacy Statement, accessible via https://complianz.io/legal/privacy-statement/.

4. Disclosure practices

We disclose personal information if we are required by law or by a court order, in response to a law enforcement agency, to the extent permitted under other provisions of law, to provide information, or for an investigation on a matter related to public safety. If our website or organisation is taken over, sold, or involved in a merger or acquisition, your details may be disclosed to our advisers and any prospective purchasers and will be passed on to the new owners.

5. Security

We are committed to the security of personal data. We take appropriate security measures to limit abuse of and unauthorised access to personal data. This ensures that only the necessary persons have access to your data, that access to the data is protected, and that our security measures are regularly reviewed.

6. Third-party websites

This privacy statement does not apply to third-party websites connected by links on our website. We cannot guarantee that these third parties handle your personal data in a reliable or secure manner. We recommend you read the privacy statements of these websites prior to making use of these websites.

7. Amendments to this privacy statement

We reserve the right to make amendments to this privacy statement. It is recommended that you consult this privacy statement regularly in order to be aware of any changes. In addition, we will actively inform you wherever possible.

8. Accessing and modifying your data

If you have any questions or want to know which personal data we have about you, please contact us. You can contact us by using the information below. You have the following rights:
– You have the right to know why your personal data is needed, what will happen to it, and how long it will be retained for.
– Right of access: You have the right to access your personal data that is known to us.
– Right to rectification: you have the right to supplement, correct, have deleted or blocked your personal data whenever you wish.
– If you give us your consent to process your data, you have the right to revoke that consent and to have your personal data deleted.
– Right to transfer your data: you have the right to request all your personal data from the controller and transfer it in its entirety to another controller.
– Right to object: you may object to the processing of your data. We comply with this, unless there are justified grounds for processing.
Please make sure to always clearly state who you are, so that we can be certain that we do not modify or delete any data of the wrong person.

9. Submitting a complaint

If you are not satisfied with the way in which we handle (a complaint about) the processing of your personal data, you have the right to submit a complaint to the Netherlands Data Protection Authority, i.e. the ‘Autoriteit Persoonsgegevens’, accessible via https://www.autoriteitpersoonsgegevens.nl/.

10. Our contact details

Our legal seat is in the Netherlands and has this address:

Stichting European Sarcoidosis Foundation (Eurosarcoidosis)
Kievitstraat 9-B
3443 BD Woerden
Netherlands
Website: https://www.eurosarcoidosis.org
Email: Please use our mailform, accessible via https://www.eurosarcoidosis.org/contact/.

Eurosarcoidosis and European Sarcoidosis Foundation are names of a research charity registered with the Netherlands Chamber of Commerce under numer KVK80246095.